Help Us Accelerate LGS Research!
LGS and LGS-Related DEE Collaborative Outcomes Registry (LGS-CORE Study)
Welcome to LGS-CORE Study, a groundbreaking initiative where your experiences become the cornerstone of scientific progress. As a participant, you’re not just sharing information – you are actively shaping the future of Lennox-Gastaut Syndrome (LGS) research and care. Together, we are building a comprehensive knowledge base that will empower scientists, clinicians, and families in the fight against LGS.
For more information about how to register, click here.
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the Lennox-Gastaut Syndrome (LGS) community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your Lennox-Gastaut Syndrome (LGS) research?