Contact Us
LGS and LGS-Related DEE Collaborative Outcomes Registry (LGS-CORE Study)
Sponsor
Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Rd, Suite 1, Unit 420878
San Diego, CA 92142
www.lgsfoundation.org
Registry Contact
Tracy Dixon-Salazar, PhD
research@lgsfoundation.org
(718) 374-3800
Institutional Review Board (IRB)
North Star Review Board
learningirb.org
info@northstarreviewboard.org
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An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at info@northstarreviewboard.org.
Visit the National Organization for Rare Disorders home page at rarediseases.org.