Announcing the Launch of the LGS-CORE Study

We are pleased to announce the launch of the LGS and LGS-Related DEE Collaborative Outcomes Registry (LGS-CORE Study)! The LGS-CORE Study creates a platform for patients around the world to strengthen their voices and share information about Lennox-Gastaut Syndrome, a disease that causes uncontrolled seizures of multiple types, often severe, that lead to developmental delay and lifelong intellectual disability. Patients, caregivers, and families are further impacted by issues with sleep, behavior, movement, feeding, communication and many other areas. Lennox-Gastaut Syndrome currently has no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve Lennox-Gastaut Syndrome patient care. Join now and let your data tell your story!